By Hannah Awadzi, GNA
22, GNA - Ms Deborah Mangortey, mother of a child with Down syndrome, has
called on the government to establish a free health care policy for children
with complex health needs for the first five years of their lives.
She said a free
health care policy will ensure that such children get all the necessary
assessments and therapy recommendations and help the children get early
children with complex health needs and disabilities are already burdened by the
huge financial commitments that comes along with nurturing them, the system
also puts stumbling blocks in the way of parents,” she said
made the call at the Special Needs Parenting Summit, a forum that brought
together parents of children with Special Needs to dialogue on how they can
make inputs into national policies.
advised parents to avail themselves for research purposes and share their
stories publicly since that would help make systemic changes.
in research and data collection, share your stories and make yourselves
visible,” Ms Mangortey said, adding that disability was part of life and there
is the need for parents of children with disabilities to make themselves
Needs Parenting Summit is aimed at amplifying the voice of parents of children
with Special Needs in the formulation of national policies.
Quaynor, mother of a man with autism; Mrs Mary Kuffuor, mother of a teenager
with autism; Mrs Justina Yiadom Boakye, mother of a child with Osteogenesis
Imperfecta; Mrs Lydia Bedwei, mother of a woman with cerebral palsy; and Madam
Agnes Teiko Nyemi-Tei, mother of a girl with Down Syndrome; shared their
success stories and called for unity and collaboration among parents to enable
them make the needed impact in policy decisions
Appiah, Chairperson of the Gender Committee of the Ghana Federation of
Disability Organizations (GFD) guest Speaker for the occasion, urged the
mothers saying “some problems create opportunities for us”
She used the
opportunity to educate parents of children with disabilities on the role of the
Mrs Hannah Awadzi,
Founder and Executive Director of the Special Mothers Project, said following
the summit, a communique will be sent to the relevant Ministries, Departments
and Agencies to inform their policy formulation on children with Special Needs.
The Special Mothers
Project provides an online platform for parents of children with Special Needs
to share ideas and experiences, network and engage in peer counselling